Pain

Dear Jesus,

You know my heart, you know my hubby's heart. Please Jesus, bring us peace, shalom, take away the fear and anxiety. You are able. We know and trust that you are. We ask and pray that you would take away our unbelief, replace it with more of You.

My insides shake with nervousness, that part I can hide. My hands shake with it too. This part, the world can see. I can smile because I know God loves me, I know where I am going if I were to die, because the world wants to see my happy face. 

But my insides don't want to smile. They want to scream that life is not fair, haven't I suffered enough God??? Hasn't Josh suffered enough?

I know that your suffering on that cross was so much greater, big enough to take away the sins of all humanity, yet still I hurt.

Where is our family when we feel like we are falling? Where is the comfort of my momma's arms or the smile on my daddy's face? How do I be the strong one in our little family of 5 when it feels like life is too hard?

 

Josh is paralyzed. He is a quadriplegic. If that was the extent of what we had to deal with on a daily basis, we could both manage. But that's not all. Not even close.

Have you ever heard of the term "phantom limb pain"? It's the pain that someone experiences in an arm or a leg that is no longer there. It's the easiest way for me to describe the nerve pain that Josh experiences. The doctors refer to it as neuropathy or hypersensitivity. He refers to it as burning hell. Stick your hand in burning flames and feel it burn. Don't take your hand out of the flame because the intense burning does not stop.  He feels this pain in very specific places all over his body, places that do not work because he is paralyzed. Yet, they hurt, they scream out in pain. 

The number of medications he has tried, increased dosages of said medications, surgeries, stretching, oils, nerve blocks, have brought little to no relief. The side effects add to ugliness.

He laid in bed this morning, tears running down the side of his face and into his ears, fearing we have tried everything. What if he has to live with this pain for the next 40 or 50 years? How is this living? What else is there to try and tame this ugly beast called nerve pain? 

Where is my husband? The jovial one who is always cracking jokes, being silly, loving on me endlessly? Why does the pain get to take away who he is, his personality? Why, Lord??? What is  your purpose? What are we supposed to be learning from this? 

Oh Jesus, be my Comforter, my Rescuer. Remind my heart again and again of 2 Corinthians 1. YOU are the God of all comfort, my Father of compassion. Give me patience and endurance to walk this road you have called me to. Give me faith, knowing that you are in control, that your purposes are being met, that you are aware of my hurting heart. Remind me that you are my peace. 

Come quickly, Lord Jesus for your child is weary.

Posted on March 2, 2015 .

Valentine's Day Disaster

For the first years of our marriage, Valentine's Day was a holiday that we always made a pretty big deal about. After nearly 15 years of marriage, four kids, life, busyness, this holiday has become smaller and smaller. 

Today, on the way to Ephram's basketball game, after an extremely hectic week of working on our non-profit and paperwork up the wazoo, I turned into the angry wife with horns and smoke blowing out of her nostrils. Definitely not my best moment ever, and today is supposed to be this romantic holiday where we constantly peer into each other's eyes and speak of our undying love to one another, experience the butterflies in our stomachs over how we married the perfect person for us, and give and receive flowers and gifts that are perfectly thought out for the other. 

Failure.

I am a human.

We fight on Valentine's Day.

We are not the perfect couple who lives in absolute harmony.

There are many times when we each need to go to our own areas of the house so we don't end up saying things we really don't mean, just because we are angry.

But, I live with a Godly man who is quick to forgive, willing to change, always trying to be a better man. I hope he can say the same about me (okay, the quick to forgive part is one I'm constantly working on). 

Our lack of celebrating Valentine's Day will probably not change. We will go out mid next week for dinner and peer into each other's eyes and remember why we are in love with each other. Then, we will do the same thing again a few weeks from now, and again, and few weeks from then. 

Valentine's Day is a great day to encourage us to celebrate our special someone, I just pray we can celebrate this gift of marriage, the gift of where two become one, all year long. 

 

Posted on February 14, 2015 .

Divorced over Whaaaat???

If you've read our story, read a few of our blogs, you probably already know what our stance is on divorce: Run away from this word, reconcile if at all possible, honor the vows you made before God and your spouse and stay together for better or for worse. Yes, I am well aware there are situations where divorce seems the only answer, the only smart answer, I am not here to agree that point. 

I write this to tell you how disappointed I am with our federal and state governments when it comes to marriage and disabilities. When I stood before Josh on the day of our wedding, he stood exactly one foot taller than me, and I promised this big, burly guy I was madly in love with to love him in sickness and in health. 

God has tested that vow, many times and yet we stay committed to our marriage.

Which leads to the purpose of this blog. 

Because I am Josh's wife, I am not allowed to be paid for any care I provide for him. The state will pay for someone else to come in to our home and help him get up for the day and then pay someone else to put him to bed at night. 

Last night, no one showed to put him to bed. Tonight, no one showed until about 30 minutes before the end of the shift and she was very eager to get going home (which means more work for me).

I would be okay with this if the state were willing to compensate me instead (heck, we could really use the money), but alas, we are married, so, no money. 

I didn't understand this fully until I was in the Department of Human Services Office and our coordinator asked if we had ever considered getting a divorce. (Us? Consider getting a divorce, with all our history of hard marriage stuff, infidelity, etc. Yes, we had thought about getting a divorce, but that was long in the past.) She went on to explain like it was the most normal thing in the world that we could get divorced on paper, we could still live together, raise our children together, that very little had to change, but that I would be paid as being Josh's sole caretaker and I would also get benefits as a single mom. 

I. Was. Disgusted.

It was not remotely enticing and never will be. I take the promise I made to Josh, to honor him, respect him, to love him, to take care of him in sickness and in health, to go where God leads us together, because we entered a covenant relationship, because we promised ourselves to only each other.

I pray that the coordinator at DHS did not just think I was a psycho but could somehow see the heart and passion behind my flaming eyes. I will protect my marriage, the sanctity of it, and if the people at the state or federal government think I'm stupid for not taking advantage of an easy way to make more money-so be it.

I will trust that God's desire is for my marriage vows to stay in tact and that He will bless us more than the government will any day. 

I will place my trust in Him, and let the other cards fall where they may.

Posted on January 27, 2015 .

Loving a friend through tragedy

Losing Ava was the hardest experience I’ve ever had to endure. It continues to be something I deal with on a daily basis. If I could somehow describe someone physically ripping my heart from my chest, burying it with my baby girl, and then asking me to continue on living for nine plus years, that may be similar to my physical and emotional experience.

The overwhelming grief, physical pain in my chest, the knot I could never swallow down, the darkness of knowing how permanent death was, would often make me feel like I would never, could never, survive. There were mornings where I would wake up with such a heaviness in my chest and a desperation in my heart that it physically made me want to pull my hair out.

And yet this post is not about Ava. It's about you, the reader.

I am going to write about how friends and acquaintances helped (and hurt) us after the loss of Ava and also after Josh’s injury. This list is not exhaustive, nor is it going to be exactly what every person needs after a loss, but I thought it may be a help to some who have friends going through tragedy.

Please know, loss is ugly. The grief stricken do not mince words or easily see other people’s points of view. Grief is a very selfish experience. Please allow for this. It will not last forever. If you are one who takes offense very easily, remember, this is not about you. This is about a momma or a daddy, a grandma or a grandpa, who is hurting deeply, who does not know where to go with all the pain they are experiencing. If they are taking their pain out on you, be understanding; they are comfortable enough and feel safe enough in your relationship to be real with you. Please don't go running home and call a mutual friend and talk about how awful the person was to you. Be an understanding, grace giving friend. I recall screaming without reason, with tears streaming down my face, taking my anger out on a few select people; these were the people I ended up crumpled up in their arms, sobbing, wailing, missing my baby so deeply I had difficulty expressing it. It was so deep and so ugly I remember it scaring my two older kids.

After Ava died these are some specific things that were helpful:

 1.     Friends who came and sat with me- they didn’t talk, didn’t give advice, they just listened  Job 2:13 says that after Job had lost everything his three friends came to him and sat with him for seven days and seven nights. No one said a word to him, because they saw how great his suffering was. I spent a lot of those first few days processing out loud. I said the same things over and over again. I recalled the horror of finding Ava in her crib and the realization that she was not alive again and again. I’m sure it was extremely difficult for my friends and family to hear this story time and again but my emotional health was dependant on processing all of these ugly memories.

2.     Please don’t say you’re willing to help unless you really mean it. Many people offered to help in the first few days after Ava’s death, but were unable to help in the few weeks to months after her death when real life set in. There was even a quote that Josh and I began to make fun of...

" Please let us know if there is anything we can do."

One couple said this, and then the following weekend when Josh and I desperately needed to get away on Friday night said, "Ooh, sorry. We have plans with friends at the Coast Guard Festival tonight."

That was when Josh and I were really in need of help. We needed the help to go on a date to reconnect after I had spent all day with the kids, trying to keep my grief bottled up, Josh had been at work all day, and I just needed to be with my husband. The divorce rates of couples who have lost children is high, and we needed to make time for each other. We did not want to become another statistic. Helping weeks and months down the road is extremely meaningful.

3.     Those who didn’t immediately try to find meaning in Ava’s death or Josh’s accident were the people we were drawn to. Yes, we find meaning now, but days and weeks after the accidents, I didn’t want to hear why people believed this had happened or why God had allowed this to happened. It was hurtful and made me angry.

4.     Meals were extremely helpful after both accidents. My brain was swirling with so many decisions that had to be made, there was no way I could make dinner, much less go grocery shopping. The meals made in disposable containers were extremely helpful because I didn’t need to keep track of who to get the containers back to. Also, after Ava died, I was extremely nervous around people I didn’t know well. I loved that people were willing to bring meals, but it brought me anxiety to have to meet people to return dishes. Just being honest. (Also don’t hang around to talk when you drop it off). Every bit of my life was out of my comfort zone and having to have surface conversations with people that I knew very little if at all was extremely difficult for me. My emotions were like a roller coaster and I never knew when something was going to cause me to break down unexpectedly. Eventually, a friend of mine acted as the liason between the meal drop off and she would drop them off to us. It was very helpful to our family and also to our kids to know who to expect and not have strangers coming and going all the time.

5.     There were many days that I didn’t want to talk to anyone, but seeing their name on my caller I.D. was a reminder that they had called, even if I had not answered. It was a reminder to me that there were people there for me if I needed them. Be the friend who calls. Call a lot. A dear friend of mine had a short conversation with me shortly after Ava died and told me that she was going to be calling me a lot, it was up to me if I answered the phone. She wanted me to know that she was there for me and available if I needed her. That’s a true friend. I look at this as the best advice I received after losing Ava and often pass it along to other’s who have friends going through tragedy.

6.     If you’ve gone a long time without contacting your hurting friend and you end up seeing her or talking with her, address the lapse in communication immediately. She knows. It hurts her. An apology goes a long ways. Your friend knows how awkward it is, just don’t make it more awkward by ignoring the fact that you haven’t been in touch. These are the types of things that ruin friendships and it’s just not worth it.

7.     Guys (and girls too): give your friend a chance to be destructive. Grief creates a ton of pent up energy that needs to be expended. Our family took Josh and I into my parents woods and let us break all kinds of porcelain things. It. Was. Wonderful. There was a ton of clean up to do (an old toilet, lots of old dishes, etc.) but it was extremely cathartic.

8.     Oh, and last thing. Please don’t judge. Grief can cause even the most devoted  Christians, refined men and women to swear like sailors. Just giving you fair warning.  There are so few words that seem to express the deep grief, anger, shock, helplessness, the longevity of life you have before you without your loved one, curse words just seem to describe the depth of your pain a bit more adequately. Please don’t judge.

If you have suggestions that were helpful to you after a death or a tragedy, I would love it if you posted it in the comments. Anything we can do to help others walk down this path of tragedy without being hurtful is a step in the right direction.

Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, 4 who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.
— 2 Corinthians 1:3-4

 

Posted on December 11, 2014 .